#ShowUsYourRare for GIST Awareness Day!
Last year’s inaugural GIST Awareness Day was a huge success, and we know with your help 2015 will be even bigger and better! This year, we’re celebrating GIST Awareness Day by creating a photo mosaic [...]
Advocacy in Chile Moves Forward: an Update
New steps have been taken in Chile that will benefit patients who need high cost treatments. Piga Fernández, LRG Global Consultant in Chile, together with representatives of 26 patient organizations has been working on [...]
#GIST31Wishes Campaign
Our GIST Wishes We highlighted one GIST wish every day in the month of December, turning our hopes and dreams into visions for the future. Members and staff shared their heartfelt wishes such as: [...]
Life Raft Group Joins The Global Community In Honoring World Cancer Day 2015
The Life Raft Group joins the global community in honoring World Cancer Day 2015.We join with everyone in the cancer community: researchers, physicians, advocates, patient organizations, government agencies, and most importantly, patient and caregivers to [...]
Piga Fernández: Advocate For Change
Advocacy for GIST patients is a vital part of the work the Life Raft Group undertakes, but there are advocacy “superheroes” out there, going above and beyond to ensure that all GIST patients receive [...]
Life Raft Group Attends Partnering For Cures Meeting
The sixth annual Partnering for Cures meeting sponsored by FasterCures was held November 16-18 in New York City. Over 1,000 attendees from biopharma, governmental agencies, academia, philanthropy and patient advocacy organizations came together to [...]
Fundacion GIST Advocates for Rare Disease Day In Mexico
LRG's Rodrigo Salas, member of the Board of Directors, was interviewed on Televisa Monterrey as part of Fundacion GIST Mexico's citizen initiative to have February 28 declared "Rare Disease Day" in their home state [...]
The Life Raft Group Featured in Wayne Magazine
An article in the Fall issue of Wayne Magazine, a North Jersey Media publication, features The Life Raft Group, bringing awareness to the community about our mission to cure GIST, and to support those living [...]
New Horizons Takes Place in Zurich, Switzerland
With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.
Affect Change From The Top: A GIST Advocacy Primer
In preparation for July 13th's GIST Awareness Day we have invited top advocates to share their best strategies on how to campaign for change and raise awareness about GIST.