Patient Powered Science For Life

Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.

The Latest


Read the latest articles from the LRG

Read News


Stay up to date on the latest LRG events. Events include fundraisers, support groups, and educational events.

Upcoming Events


Couldn't attend an event?  Want to learn more about GIST?  Visit our video library to find event replays and educational videos.

Watch Videos


GIST Patient Registry

The GIST Patient Registry is an ongoing research study where GIST patients and caregivers from all over the world volunteer their information regarding their GIST treatment.

This information is used to understand the natural history of GIST, treatment outcomes, and to help accelerate research with our Real World Evidence Data.

Members of the LRG

Our members embody the meaning of courage.

Each member story is unique, but all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for life.

Support Our GIST Community

Please help us continue our efforts with your continued support and donations. We aim to accomplish this by assuring that GIST patients have access to the right diagnosis and treatment, and by supporting research to develop new treatments for those patients for whom current treatments are not effective.

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