Patient of the Month for August: Julie Durkee
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Julie Durkee shares her story.
TargetCancer Foundation Announces Rare Cancer Precision Medicine Research Initiative
TargetCancer Foundation (TCF) proudly announced today the initiation of the TCF-001 TRACK (Target Rare Cancer Knowledge) Study, an innovative trial that brings advances in precision medicine to people living with rare cancers and their treating physicians, right in their own communities.
Giving Tag Fundraising Campaign for the LRG by Stop & Shop
With the Giving Tag, shoppers can support the LRG by directing their $1 donation generated from the purchase of the $2.50 Community Bag.
Daily Mental Energy Checklist
Dealing daily with a pandemic along with GIST can be a daunting task and it may feel difficult sometimes to even face a new day. Paying attention to your mental health is an important part of everyday self-care. We have composed a Daily Checklist to help you consciously acknowledge where you are at the beginning of your day, work with those feelings, and reflect on your successes.
LRG Receives COVID-19 Rapid Response Seed Grants from NORD
The National Organization for Rare Diseases (NORD) has awarded 19 seed grants to non-profit organizations that have been adversely affected by the COVID-19 pandemic. The pandemic has created a financial crisis for non-profits due to the cancellation of large events, particularly fundraisers upon which these organizations depend.
COVID-19 – Resources GIST Patients Need
COVID-19 - Resources GIST Patients Need - Please know that the Life Raft Group is here to support you during this Coronavirus crisis. We will continue our daily services during this time and we will be distributing information and messages of hope through all our communication channels.
Our mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.
Partnership for Survival – Treating the Rarest of the Rare
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Survival in Advanced GIST Has Improved Over Time – LRG Science
In this issue of LRG Science, the relationship between overall survival (OS) and access to treatments after imatinib failure is explored. In 2019, the LRG published this research in Clinical Sarcoma Research and this issue includes commentary from experts. LRG Science endeavors to be a respected source of timely, science-based information built on real world data designed for those whose focus is to increase patient survival from GIST and other cancers.
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