An article in the Fall issue of Wayne Magazine, a North Jersey Media publication, features The Life Raft Group, bringing awareness to the community about our mission to cure GIST, and to support those living with it until then.
Featured in the Wayne Magazine article is the history of the LRG from the early days with a handful of patients that began to share their experiences. Under the direction of our Executive Director, Norman Scherzer, the LRG expanded to create key initiatives such as research, education and support and advocacy, and our unique campaigns like the Rare 13 and our GIST Awareness Day origami challenge and annual poker tournaments. It brings to light that the LRG is truly a worldwide community that evolved from a grass roots effort into an international support community with a strong presence in the world of GIST research through the LRG Research team. This is a timely article, as we are about to gather together at our Life Fest convention on November 7-9 in Teaneck, New Jersey, where patients will share their strength, hope and experience, researches and medical professionals will share their knowledge, and those who have contributed to the success of the LRG through their tireless efforts will be honored at an award ceremony on Friday evening.
Article such as this one can be helpful in raising awareness about GIST. It is vital that information about rare diseases are brought to the attention of the public, and very often local publications are interested in telling the story if there is a local focus. Wayne Magazine has helped to disseminate information about the LRG in North Jersey, but the LRG would love to have stories like this one in local publications around the globe. If you would like help reaching out to local publications in your area, please contact Erin Kristoff, LRG’s Marketing and Communications Director: firstname.lastname@example.org.
The full article can be accessed here.