Sara Rothschild

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So far Sara Rothschild has created 33 blog entries.

Partnering with Selnet

The Life Raft Group is pleased to announce a new partnership with SELNET, a project which is creating a multidisciplinary network of European and Latin American clinical and translational specialists. This project’s goal is to improve diagnosis and clinical care in sarcomas and  establish guidelines for referral policies, diagnostic methods, clinical practice guidelines among other necessary changes to current practices.

By |2019-10-30T11:01:48-04:00October 29th, 2019|News, Newsletter|

Collaborating with the NCCN FOUNDATION

The NCCN Foundation produces patient booklets that contain evidence-based disease information and important guidance to help patients formulate questions that are important to them. The Life Raft Group, a leading patient advocacy organization, is working with the Foundation to endorse these guidelines.

By |2019-10-30T11:32:43-04:00October 29th, 2019|News, Newsletter|

Teaming up with MyPART

MyPART’s mission is to engage patients as partners in rare tumor research. As an advocacy partner, our aim is to improve the outcomes of patients with rare tumors and identify and engage patients through education and the dissemination of information.

By |2020-04-06T14:44:25-04:00October 29th, 2019|News, Newsletter|

New Horizons – International Focus on the Power of Real World Data to Enhance Advocacy Efforts

International advocates meet in Wayne, NJ, at the annual New Horizons GIST Conference to discuss scientific updates, regional issues, and unmet needs for the global GIST community in May 2019.

By |2020-07-15T14:51:55-04:00June 20th, 2019|Advocacy, Global, News, Newsletter|

Pediatric & SDH-Deficient GIST Consortium Update

Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]

By |2019-02-21T16:00:26-05:00February 21st, 2019|News, Newsletter, Pediatric GIST, SDH-Deficient GIST|

The Pediatric & SDH-Deficient GIST Consortium

Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]

By |2018-10-30T12:14:09-04:00October 24th, 2018|Advocacy, Newsletter, SDH-Deficient GIST|
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