Professor Dan Ariely The Clinical Trials Transformation Initiative (CTTI) held its quarterly Steering Committee meeting this past September in Washington DC, which focused largely on effective ways to increase adoption of clinical [...]
Pediatrician and breast cancer survivor, Janet Sollod, gives a touching Time=Lives talk, "Approaching the Abyss." LRG staff members, Michelle Durborow and Erin Kristoff attended the Partnering for Cures 8th Annual Meeting hosted [...]
Until cures are found, drug therapies are a lifeline to someone with cancer. Yet, the Life Raft Group’s GIST Patient Registry has recorded over 800 reports of patients interrupting their drug therapy usage because [...]
We are in the midst of one of the most exciting times in history to be involved in cancer research. Over 60 anti-cancer drugs have gained FDA-approval in the last 10 years, and that [...]
The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]
Last year’s inaugural GIST Awareness Day was a huge success, and we know with your help 2015 will be even bigger and better! This year, we’re celebrating GIST Awareness Day by creating a photo mosaic [...]
Reprinted and revised from the February, 2011 LRG Newsletter. With Valentine’s Day looming, thoughts turn to relationships. There are often unrealistic expectations of the day: a dozen red roses, a satin heart filled with [...]
Pediatric GISTer, Sile Bao graduated on May 19 and already started her first job at Princeton University in July. Ashley Young Vincent, gave birth to a beautiful baby girl named Lily on June 24. GISTer Mo Collins, married her partner, Alex Skuby on June 25 in a lovely ceremony.
After ten years as an established non-profit, the Life Raft Group identified a critical need in its public image. While the LRG began as a small group of patients and caregivers offering support and guidance to each other while facing the early Gleevec trials, the LRG has now grown into a multi-million dollar international organization, heavily involved in advocacy work and changing the face of GIST research. While we remain true to our support & education roots, the LRG required branding to reflect our current stature and credibility in the medical field.
Mo Collins is not your typical actress/comedienne, because Mo Collins is a GIST survivor. Keep reading to learn more about Mo Collins and her fight against GIST. Mo is using this gift in a very selfless way by organizing a comedy fundraiser for the Life Raft Group and GIST research.