Portland GDOL is First for LRG
GDOLs are free, one-day programs that provide both education and support for the GIST community. Top GIST specialists present the latest on research and treatment options and provide a comprehensive review of the [...]
Local Advocacy: LRG supports NJ Bill A-2337
Although GIST is among the few rare diseases that has available drug therapy treatment options, the cost of these lifesaving medications can sometimes impose deep financial hardship, depending on the terms of the patient’s [...]
LRG Supports New Jersey Legislation to Limit Patient Cost Sharing
Although GIST is among the few rare diseases that has oral chemotherapy drug treatment options available to its patients, the cost of affording these life saving medications can sometimes impose deep financial hardship depending [...]
Genetic Alliance Event Invites Collaboration
Genetic Alliance recently held an event in Chapel Hill, N.C. that brought together patient advocates, scientists and representatives from the pharmaceutical industry in a unique “speed-dating” format. Disease advocacy organizations were invited to present briefly [...]
LRG Bear on the Chair: 31 Days to Raise GIST Awareness
Last year, the Life Raft Group had a very successful campaign in the month of December, #GIST31Wishes. This year, we want to make those wishes come true with a campaign that encourages action. A [...]
On the road with Milly: Toto, We’re Not in D.C. Anymore!
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
On the Road with Milly: LRG Takes the Hill
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in order to take on their string of meetings with policymakers on Capitol Hill. [...]
On the road with Milly: Live from Washington – Training for the Hill
Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter Milly here, reporting live from Capitol Hill. Oh, wait, not yet, technically right [...]
On the road with Milly: LRG Advocates in Washington, DC
Live from Washington By Mildred Menos Hi Guys, Some of you may know me from hosting GDOLs (GIST Days of Learning in your city, that welcome phone call you received when you became a [...]
International Seminar on Cancer Policies in South America
In Santiago, Chile, on April 22, 2015, The Chilean Health Ministry (MINSAL) organized a seminar to discuss regional policies for cancer prevention and control. Representatives of WHO, OPS, RINC, and UNASUR, were invited along [...]