NIH Clinic

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News from the 17th NIH Pediatric and Wildtype GIST Clinic

The NIH Pediatric and Wildtype GIST Clinic is a collaboration amongst researchers, specialists, patient advocates, patients and family members, with the goal of furthering the knowledge of SDH-deficient gastrointestinal stromal tumors (GIST) in order to develop more effective therapies.

By |2019-12-19T11:25:54-05:00October 29th, 2019|News, Newsletter, SDH-Deficient GIST|

NIH Clinic Combines Research, Knowledge, and Hope

I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]

By |2018-10-29T14:00:41-04:00September 18th, 2017|News, Newsletter, Patient Support, Pediatric GIST|

15th Pediatric and Wildtype Clinic Provides Support and Education

The 15th Pediatric and Wildtype GIST Clinic was recently held at the National Institute of Health in Bethesda, Maryland on July 5 - 7, 2017. The Clinic is a collaborative effort between clinicians and [...]

By |2018-10-29T14:03:07-04:00August 16th, 2017|GIST Education, News, Pediatric GIST|

NIH Pediatric and Wildtype GIST Clinic Report: Surgical Management

A recent report from the National Institutes of Health Pediatric and Wildtype GIST Clinic, published in the Journal of Clinical Oncology suggests that surgical resection for wildtype GIST should be restricted to the initial [...]

By |2018-10-30T09:25:10-04:00January 10th, 2017|News, Research|

14th NIH Pediatric and Wildtype GIST Clinic Convenes

If you have a mutation of any of the SDH subunits (a,b,c, or d), the next important question to ask is whether or not it is a germline mutation. (So far, data has indicated that 80% of SDH-deficient tumors are germline). The term "germline" means that the mutation is present in every cell of your body. Germline mutations are hereditary, and can be passed on to your children. For this reason, genetic testing and counseling could be informative for parents, siblings and other family members. If a family member tests positive for the mutation, this does not mean that they will get GIST.

By |2019-11-08T10:25:09-05:00June 23rd, 2016|News, Pediatric GIST|
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