Did You Know? The LRG Hosts Monthly Virtual GISTer & Caregiver Support Groups
The Life Raft Group hosts two monthly support groups - one specifically for GISTers and the other for Caregivers which meet twice a month- via Zoom.
11
07, 2022
22
12, 2021
A Positive Spin for 2022 – Jimit Mody’s GIST Journey
Jimit Mody shares his GIST journey and how a positive attitude and determination keeps him going.
28
10, 2021
Common Side Effects & How to Manage Them
Every GIST patient (and person in general) is unique, however, there are some common issues that patients may face during their GIST journey.
27
10, 2021
Tissue Testing Project
The Life Raft Group (LRG) is providing you with this information to let you know that comprehensive genomic profiling, also known as biomarker testing or molecular testing, is a crucial step in understanding the genomic factors that play a role in a GIST diagnosis. Bayer Pharmaceuticals, in partnership with The Life Raft Group (LRG), has extended a research collaboration to broaden access to comprehensive genomic testing (CGT) for Gastrointestinal Stromal Tumor (GIST) patients.
18
08, 2021
COVID-19 – Resources GIST Patients Need
COVID-19 - Resources GIST Patients Need - Please know that the Life Raft Group is here to support you during this Coronavirus crisis. We will continue our daily services during this time and we will be distributing information and messages of hope through all our communication channels.
25
05, 2021
Patient of the Month for May: Pamela Trovato Nau
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Pamela Trovato Nau shares her story.
24
02, 2021
April Stephens, Long-Term Survivor
The average GIST patient is in their 50s or older when diagnosed with GIST. The rare exception is usually a pediatric SDH- deficient GIST, but April’s case is a case of ‘the rarest of the rare’ in that she was only 20 years old when she first encountered GIST and was not SDH-deficient.
9
02, 2021
Caregiver of the Month for February: Bonita Morgan
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Bonita Morgan shares her story.
16
12, 2020
Normal Life Interrupted
Angel Selena Rodriguez was living what she considered a very normal life. She was studying medicine, playing violin in an orchestra, and enjoying painting and drawing, and university in Venezuela.
17
11, 2020
Words of Wisdom from Women in Sarcoma
We asked the amazing honorees of the first annual Women in Sarcoma Gala some personal questions to help us learn more about them, and their experiences. Have you RSVP'd for the Gala on Dec. 10 at 6PM ET? RSVP today for this free, virtual event, to be held in loving memory of GISTer Nikki Morales.
Need a new search?
If you didn't find what you were looking for, try a new search!