Monthly Archives: October 2019


Teaming up with MyPART

MyPART’s mission is to engage patients as partners in rare tumor research. As an advocacy partner, our aim is to improve the outcomes of patients with rare tumors and identify and engage patients through education and the dissemination of information.

By |2020-04-06T14:44:25-04:00October 29th, 2019|News, Newsletter|

Global Representative Spotlight

As a representative for the country, I would first like to identify the number of GIST cases in the country. My next task would be to raise awareness about this tumor, and let people realize that it is manageable with medical treatment.

By |2019-10-30T11:01:04-04:00October 29th, 2019|News, Newsletter|

LRG Cookbook Fundraiser

The Life Raft Group’s Outreach & Engagement department is excited to announce that we are launching a LRG community cookbook which will be sold at the upcoming Life Fest in July 2020.

By |2019-10-30T11:01:31-04:00October 29th, 2019|News, Newsletter|

17th NIH Pediatric and Wildtype GIST Clinic Held

The 17th Pediatric and Wildtype GIST Clinic was held at the National Institutes of Health in Bethesda, Maryland on September 25-27, 2019. The Clinic was a collaboration amongst researchers, specialists, patient advocates, patients, and family members, with the goal of furthering the knowledge of SDH-deficient Gastrointestinal Stromal (GIST) tumors in order to develop more effective therapies.

By |2019-10-07T15:49:22-04:00October 7th, 2019|News, Research, SDH-Deficient GIST|
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