Monthly Archives: April 2014

Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board

The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the first Pediatric GIST Virtual Tumor Board!* Due to severe funding cuts that reduced [...]

By |2019-04-05T11:04:10-04:00April 11th, 2014|GIST Education, News, Pediatric GIST, SDH-Deficient GIST|

Altered Taste Syndrome – Tips for Enjoying Food while Fighting GIST

There are a number of side effects caused by GIST medications. Altered taste syndrome is a common and annoying side effect for many GIST patients. Gleevec and Sutent have a bitter taste associated with them, like [...]

By |2022-01-05T13:35:27-05:00April 11th, 2014|News, Side Effects|

Complete Resection May Result in Long-Term GIST Survival

The results of a retrospective study indicated that patients with metastatic gastrointestinal stromal tumors (GIST) who are able to achieve complete macroscopic surgical resection of their disease may be able to achieve long-term survival.

By |2019-09-20T15:47:08-04:00April 2nd, 2014|News, Research, Surgery|

GDOL Miami Attracts Large Attendance This Year

Over 80 GISTers and their loved ones gathered from all over to attend the 3rd annual GIST Day of Learning (GDOL) in Miami, held on February 9, to hear from the team of experts at University of Miami Sylvester Cancer Center.

By |2018-07-23T10:43:59-04:00April 2nd, 2014|Advocacy, GIST Education, News, Patient Support|
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