The Life Raft Group is dedicated to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.

LRG Patient Registry

Our Registry is an ongoing research study where patients & caregivers contribute their information regarding their journey with GIST. This data is used to understand the natural history of GIST, treatment outcomes, and to help accelerate research.

Recent News

  • Fueling GIST Research pages 4x3

The Importance of Research – Dr. César Serrano

June 28th, 2023|Comments Off on The Importance of Research – Dr. César Serrano

In this installment of Fueling GIST Research, Dr. César Serrano shares on the importance of GIST research & collaboration among institutions to build a vision of new treatments & a cure.

  • GIST Updates from ASCO

GIST Updates from ASCO

June 22nd, 2023|Comments Off on GIST Updates from ASCO

The Life Raft Group hosted Dr. Herbert Loong, who summarized abstracts and presentations from ASCO that are relevant to the GIST patient community.

  • Fueling GIST Research pages 4x3

Cultivating Partnerships – ASCO 2023 Recap

June 14th, 2023|Comments Off on Cultivating Partnerships – ASCO 2023 Recap

Our Spring to GIST Awareness Day Campaign Continues! Our spring fundraising campaign is all about Fueling GIST Research and we will be sharing examples of all the ways The Life Raft Group is involved [...]

  • LRG News Icon

NCCN GIST Guidelines 2023 Patient Version

June 2nd, 2023|Comments Off on NCCN GIST Guidelines 2023 Patient Version

The NCCN updated the clinical practice guidelines in oncology for GIST and other cancers in April and now have released the patient guidelines. Find the links here.

  • Fueling GIST Research pages 4x3

Collaborations – New Horizons GIST Conference

May 25th, 2023|Comments Off on Collaborations – New Horizons GIST Conference

Our Spring to GIST Awareness Day Campaign Continues! Our spring fundraising campaign is all about Fueling GIST Research and we will be sharing examples of all the ways The Life Raft Group is involved [...]