Erin MacBean

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On the road with Milly: Live from Washington – Training for the Hill

Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter Milly here, reporting live from Capitol Hill. Oh, wait, not yet, technically right [...]

By |2019-01-15T14:57:01-05:00June 10th, 2015|Advocacy, News|

One Hundred and Thirty Thousand Wishes: Life Fest 2014

One hundred and thirty thousand wishes, tributes, memories, goals, and dreams greeted me on arrival to the Life Raft Group’s Life Fest 2014. They were in the shape of origami boats. From a distance, [...]

By |2018-07-26T13:53:15-04:00December 8th, 2014|Advocacy, Events, Member Stories, News|

Expert patient training program a success

The LRG is proud to announce that the inaugural class of our GIST Expert Patient Training Program has been completed. The class, which was open to GIST patients, caregivers, and other members oaf the extended GIST community, was comprised of just under 20 students and was a comprehensive offering designed to help participants better understand the science behind GIST.

By |2019-09-20T11:26:37-04:00July 2nd, 2014|GIST Education, News|

An advocate’s rewarding experience at the NIH Clinic

NIH Clinic Participants From the moment I landed at the Washington Reagan Airport to the time I took off to fly back home, the Pediatric and Wildtype GIST Clinic at the National Institutes [...]

By |2019-09-20T12:20:35-04:00August 9th, 2013|Advocacy, Events, News, Pediatric GIST|
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