The National Organization for Rare Disorders (NORD) held a Rare Disease Summit in Washington, D.C. October 20019, hosting several thousand people comprised of patients, advocates, non-profit employees, health providers, IT developers, pharmaceutical staff, physicians and researchers, and representatives from government entities.
Collaboration among patient groups and working together in setting common goals is vital. Together we can have a stronger voice to achieve our participation in the decision-making on health issues.
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]
WE DID IT! National Integrated Cancer Control Act is Approved! Contributed by Rod Padua / President, Touched By Max PHILIPPINES In a country of 104 million, there are approximately 141,021 new cancer cases in [...]
Wendi Lax is our wonderful state leader for Maryland. She is currently residing in Maryland, where she is helping the Life Raft Group create unity among the local patients and caregivers. For many years, [...]
I never thought that I would be sitting at the same table with Senators from my country while voting for a law that will potentially dramatically change the lives of cancer patients in Chile. [...]
Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 and the National Cancer Law. LRG Global Consultant and Executive Director of Fundación [...]
Our Global Consultant, Piga Fernández, Executive Director of Fundación GIST Chile has asked us to help support the passage of the National Cancer Law in Chile. In 2020, cancer will be the number one cause of death [...]
The Clinical Trials Transformation Initiative (CTTI) Steering Committee gathered in Washington, D.C. on September 25th to discuss how clinical trials fit within scientific strategies to address public health priorities, review the portfolio of initiatives, [...]
On September 6th, Executive Director, Norman Scherzer and I attended the New Horizons GIST meeting in Vienna, Austria. Forty-three delegates, including GIST experts, advocacy groups, and patients/caregivers from 18 countries, gathered to share valuable [...]