Australian GISTers Volunteer as LRG Country Liaisons
The LRG is pleased to welcome Shari Reid and Dr. Amy Kenworthy as country liaisons supporting GIST patients in Australia.
The LRG is pleased to welcome Shari Reid and Dr. Amy Kenworthy as country liaisons supporting GIST patients in Australia.
Professor Amy Kenworthy's GIST journey includes inspiring her son Bryce to help children in treatment for cancer. Bryce, at nine years old, decided to take action and created a project in 2016 called Super Max & Bryce.
Artistic expression is an important psychosocial activity. In this two-part series, these GISTers - professional and amateur creatives, share their stories. In this post, painter, graphic designer & photographer, Ellen Mayer of NJ shares about her journey with GIST and creativity.
Artistic expression is an important psychosocial activity. In this two-part series, these GISTers - professional and amateur creatives, share their stories. MaKayla Evans loves painting, drawing, and photography.
The LRG was fortunate to get a few minutes with GIST specialist, Jonathan Trent, MD, Sylvester Comprehensive Cancer Center, who shared his experience with his patients over the past few months during the coronavirus pandemic.
Eric Lindberg, diagnosed with GIST in 2017, works as an emergency room nurse and has been on the frontlines throughout the COVID-19 pandemic.
Q&A with a LRG Major Donor & Fundraiser
For GIST patients, long term survival is the ultimate goal. A number of factors may influence long term survival – some of these are demographic and clinical, like mutational subtype and genetic factors. However, there are a number of others that are perhaps more subtle, such as lifestyle, attitude, and access to treatment, experts, and advice.
Amelia Yeo, LRG Country Liaison for Singapore and GIST caregiver, describes how she and her husband are doing during this global health pandemic.
Hope is an important resource during difficulty times. Mary Garland, Director of Communications for the LRG, shares her observations on hope.