Blueprint Medicines and Deciphera Pharmaceuticals celebrated GIST Awareness Day (GAD), July 13th, 2020, with Virtual Walks across the U.S. This year's GIST Awareness Day theme was #GISTHope.
Partnerships and collaborations are critical to the progress of research in rare diseases. GIST specialist & Pediatric & SDH-Deficient GIST Consortium member, Dr. Jason Sicklick, and LRG member, Debra Melikian, are working together find a cure for succinate dehydrogenase-deficient gastrointestinal stromal tumors (SDH-deficient GIST), a hereditary rare cancer syndrome which claimed the lives of Debra’s husband and her son Merak.
GIST Awareness Day, July 13th, 2020 All GIST Awareness Day Celebrations for 2020: Spain Colombia WolfStrong Team U.S. Mexico UK (Britian) Chile India Hungary Pharma The theme of GAD was #GISTHope. 2020 brought a [...]
András Szekfü, of Budapest, Hungary, shares his GIST journey in this video for GIST Awareness Day, a day set aside to bring awareness of this disease.
The LRG is hosting a virtual cooking demonstration with Chefs Rosemary and Drew Gabbe of The Fruited Plain of Parsippany, NJ, to launch our newly released cookbook, GIST Cook.
The Life Raft Group has been an integral part of a pan-cancer Working Group designed to determine consistent terminology around biomarker or mutational testing. The goal is to communicate to patients and the larger community in plain, patient friendly and consistent language what these terms mean, and how they impact on precision medicine.
