Patient-provided, patient-focused data from the Patient Registry has been a core component of the LRG’s research model. Out of the foundation of real world data, we conducted a Side Effects Survey in the early days of the LRG, which led to vital real world evidence. This data was then shared with the pharmaceutical company that developed the primary treatment for our patients, complementing the data from their early clinical trials.

Now, we developed Project InterGR

Learn more about the LRG’s Research Model

About Project InterGR

LRG Staff
Author: LRG Staff