An article in Wayne Patch, a community-specific news, information and engagement network, features Life Fest 2014, The Life Raft Group’s biennial convention which was held on November 7-9 in Teaneck, New Jersey. In the article, quotes from The Life Raft Group Executive Director, Norman Scherzer, and Marketing and Communications Director, Erin Kristoff, where given during the event. The Wayne Patch also interviewed 13-year-old Bella Rocco, who was diagnosed with GIST when she was just 7-years-old.
Articles such as this one can be helpful in raising awareness about GIST. It is vital that information about rare diseases are brought to the attention of the public, and very often local publications are interested in telling the story if there is a local focus. Wayne Patch has helped to disseminate information about the LRG in North Jersey, but the LRG would love to have stories like this one in local publications around the globe. If you would like help reaching out to local publications in your area, please contact Erin Kristoff, LRG’s Marketing and Communications Director: firstname.lastname@example.org.