Since February, I have been training for the Marine Corps Marathon on 10/30/11. I'm very happy to announce that I actually finished that thing. Can you believe it? The same person that had a hard time finishing the 3.2 miles in Sea Girt finished 26.2 miles in hilly Arlington and Washington D.C. It was a long training road filled with highs and lows, and I can't say that the marathon went completely smooth either, but I finished and got a really sweet medal for it.
A new phase I/II clinical trial will soon be opening for pediatric and young adults with GIST. This trial will be testing Sutent (sunitinib), the currently approved second-line treatment for GIST, in young patients. At the current time, the optimal dose for Sutent is not known for pediatric patients. This trial will help assess the safety and tolerability of Sutent in young patients.
An intimate group of GIST patients and supporters living in the area gathered to reconnect with and meet other GISTers and exchange each other’s experiences as well as the various technological and medical advancements and options available to them.
The Life Raft Group is hosting an online shopping event in collaboration with our dedicated volunteer photographer Kim Tallau and Touchstone Crystals Jewelry (a member of the Swarovski Group). You can shop their online store from now until December 20 with 15 percent of all sales going towards helping the LRG achieve its goal of curing GIST and to helping those living with it until then.
On November 3, 2011, the twelfth Edi film prize for the best advertising, industrial and corporate films was awarded in the Schiffbauhalle in Zurich. Our film, “Life with GIST” won a Silver Edi in the “Corporate: Internal Communication & Training” section.
On November 16, representatives of 10 countries, and Susana Sarabia from The Max Foundation, got together in a teleconference conducted by Vicky Ossio, Alianza GIST Coordinator, and Sara Rothschild, LRG Global Relations Director. Despite the difference in hours, all participated with great enthusiasm
Sergeant Major Robert D. Tikkanen, 68, of Joplin, MO passed away in his wife’s arms on Thursday, November 24, 2011 from GIST. He was born on May 22, 1943 in Portland, Maine to Henry J. [...]
The Bill Buchanan Life Raft GIST Support Group held its first meeting on Saturday, October 22 at the John Stroger Hospital of Cook County located in Chicago. This program was mentored by the LRG and made possible by the wishes of the late Bill Buchanan.
We would like to thank all New Jersey GISTers who joined us on November 12 for the NJ Chapter meeting at the Life Raft Group office. Special gratitude goes out to Dr. William Tap (second from [...]
Daniel Cunningham of Absecon, NJ, passed away peacefully surrounded by his loving family and friends on October 2nd after a long and courageous battle with cancer at the age of 63. Born in Pottsville, PA to John and Alberta Cunningham, he joined the Air Force after high school and served in the Vietnam War