A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]
In recent years we have been able to gain valuable information from the data produced by tissue donations to the GIST Collaborative Tissue Bank.
We have put together a map showing the distribution of GIST patients in the U.S. who are living with GIST in the LRG Patient Registry by state. The map shows how geographically diverse the Patient Registry is, with patients spread throughout the country.
Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.
The LRG Research Team recently held a teleconference that focused primarily on a study the team will collaborate on and intends to publish.
A Life Raft Group meeting with Latin American representatives underscored barriers to the tissue bank program and proper diagnosis of GIST in the region while generating suggestions for ways of improving the system.
The fact is GIST is a rare disease and as a result researchers simply do not have enough GIST tissue samples to do the research needed to find a cure. “Too many people are still [...]