Patient Advocates

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One Hundred and Thirty Thousand Wishes: Life Fest 2014

One hundred and thirty thousand wishes, tributes, memories, goals, and dreams greeted me on arrival to the Life Raft Group’s Life Fest 2014. They were in the shape of origami boats. From a distance, [...]

By |2018-07-26T13:53:15-04:00December 8th, 2014|Advocacy, Events, Member Stories, News|

FDA Receives Treatment Guidance from Patient Advocates

Patient advocacy is a vital component in assuring that roadblocks to optimal treatment do not prevent cancer patients from obtaining the help they deserve.  Recently, a group from Parent Project Muscular Dystrophy presented the FDA [...]

By |2019-09-20T15:00:28-04:00July 29th, 2014|Advocacy, Drug Treatment, News|
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