*Please Note: Times and speakers may change. Please check back for updates.
Registration
| Friday July 13 | Adult |
|---|---|
| 3:00 pm - 5:00 pm | Registration |
| 4:00 pm - 5:30 pm | GIST 101 David Josephy GIST Sarcoma Life Raft Group Canada |
| 5:00 pm - 7:00 pm | Informal Gathering in Lobby Bar |
*Please Note: Adult and Pediatric tracks run on different schedules before lunch.
Main Program – Saturday July 14
| Adult | Pediatric | ||
|---|---|---|---|
| 7:00 am - 8:00 am | Breakfast | 7:00 am - 8:00 am | Breakfast |
| 8:00 am - 8:45 am | Side EQ and GIST Prime Sign Up | 8:00 | Opening Remarks Sara Rothschild The Life Raft Group |
| 8:05 am - 8:30 am | Understanding Pediatric & SDH-Deficient GIST Lee Helman, MD Children's Hospital Los Angeles Moderator: Jonathan Trent, MD |
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| 8:45 am | Opening Remarks Norman J. Scherzer The Life Raft Group | 8:30 am - 9:30 am | Current Research Findings from the US and European Clinics Fernanda Arnaldez, MD National Institute of Health (NIH) Ramesh Bulusu, MD & Ruth Casey, PhD UK PAWS GIST Clinic Moderator: Jayne Bressington |
| 9:00 am - 9:45 am | Contemporary Approach to GIST Patient Care Jonathan Trent, MD Sylvester Comprehensive Cancer Center The GIST Clinical Trial Landscape Michael Heinrich, MD Oregon Health & Science University Moderator: Norman Scherzer | 9:30 am - 10:00 am | The Clinics and Genetics of Carney-Stratakis Syndrome and Carney Triad Constantine Stratakis, MD NIH Moderator: Becky Owens |
| 9:45 am - 10:30 am | Pharma Panel: Overview of Promising Trials for GIST Blueprint Medicines Deciphera Pharmaceuticals Moderator: Norman Scherzer | 10:00 am - 10:30 am | What a Patient Should Know About Paraganglioma: For Our Children, For Our Future Karel Pacak, MD, PhD NIH Moderator: Phyllis Gay |
| 10:30 am - 10:45 am | Coffee Break | ||
| 10:45 am - 12:00 pm | State of GIST: A Clinical Panel of Experts Moderator: Jason Sicklick, MD University of California San Diego Surgeon: Ricardo Gonzales, MD Moffit Cancer Center Radiologist: Ty Subhawong, MD Sylvester Comprehensive Cancer Center Oncologist: Breelyn Wilky, MD Sylvester Comprehensive Cancer Center Pathologist: Markku Miettinen, MD, PhD National Institutes of Health | 10:45 am - 12:00 pm | Q&A with Panel of Physician Experts Moderator: Jayne Bressington |
| 12:00 pm - 1:30 pm | Lunch & Celebration Ceremony GIST Center of Excellence - Sylvester Comprehensive Cancer Center Jeroen Pit Science Award - NIH Pediatric & Wildtype GIST Clinic Allan Tobes Volunteer of the Year - MacLea Family and Dillon/Morales Family |
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| 1:30 pm - 2:00 pm | Role of Mutational Analysis and Next Generation Sequencing in GIST Andrew Rosenberg, MD Sylvester Comprehensive Cancer Center Moderator: Breelyn Wilky, MD | 1:30 pm - 3:00 pm GIST Do It Activities 3:00 pm - 5:00 pm Pool Party! |
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| 2:00 pm - 2:30 pm | Role of Integrative Medicine in GIST Jorge Bordenave, MD Moderator: Breelyn Wilky, MD |
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| 2:30 pm - 3:15 pm | Breaking Down the Financial Concerns of Living with GIST Presenter: Kathy Sarmiento Alliance for Aging Panel Discussion: LRG A3 Volunteer Insurance Committee Julie Durkee-Chair Carolyn DeWalt Marlene Nei Kay Stolzer Moderator: Marlene Morales, MSW |
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| 3:15 pm - 3:30 pm | Coffee Break | ||
| 3:30 pm - 4:00 pm | Strategies for Mental Health Wellness Marlene Morales, MSW Sylvester Comprehensive Cancer Center Moderator: Breelyn Wilky, MD | 3:30 pm - 4:00 pm | The SDH Pathway Eyal Gottieb Technion Moderator: Becky Owens |
| 4:00 pm - 5:00 pm | Support Group for Adult GIST Families Facilitator: Dina Wiley, Hannah Marcus, Angela Edson | 4:00 pm - 5:00 pm | Support Group for Pediatric GIST Families Facilitator: Becky Owens |
| 5:00 pm - 5:30pm | Celebration of Life Ceremony | ||
Sunday – July 15
| Time | Session |
|---|---|
| 7:30 am - 8:30 am | GIST DO IT Walk |
| 7:00 am - 8:00 am | Breakfast |
| 9:00 am - 9:05 am | Presentation of the Clinician of the Year to Suzanne George, MD |
| 9:05 am - 9:30 am | Treating GIST Patients Suzanne George, MD Dana Farber Cancer Institute |
| 9:30 am - 10:15 am | Case Presentations by Clinicians Suzanne George, MD Dana Farber Cancer Institute Ricardo Gonzales, MD Moffit Cancer Center Vaia Florou, MD Sylvester Comprehensive Cancer Center Moderator: Suzanne George, MD |
| 10:15 am - 10:30 am | Coffee Break |
| 10:30 am - 11:00 am | Panel of Patient Stories Moderator: Laura Occhiuzzi |
| 11:00 am - 11:30 am | Be Your Own Advocate: Lessons from Patient Champions Moderator: Laura Occhiuzzi |
| 11:30 am - 12:00 pm | The Face of Courage: Closing Remarks Norman J. Scherzer The Life Raft Group |