Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Faces of Courage Holiday Campaign Launches on #GivingTuesday
Today is Giving Tuesday. #GIVINGTUESDAY is an opportunity to come together as a community to make an impact on the lives of GIST patients by helping to ensure their survival. It is a chance [...]
LRG Webcast: What is SDH, How Is It Related to Cancer, and What Can Be Done About It?
SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can 'benefit' from the loss of SDH and continue to [...]
The Life Raft Group Announces an Innovative Consortium to Accelerate Cancer Research at the Biden Cancer Summit
WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]
A New Lifeline – The Pediatric & SDH-Deficient GIST Consortium
The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.
Mutational Testing and Genetics
So, I’ve been told that I have GIST! Life changes suddenly and profoundly when you receive a cancer diagnosis. It’s normal to experience a state of shock, but there is a practical need to [...]
The Werners – Finding the New Normal Living with Wildtype GIST
Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.
LRG Presents Poster at CTOS, 2017
Dr. Jason Sicklick and Norman Scherzer co-present poster at 2017 CTOS meeting. Norman Scherzer, Executive Director of The Life Raft Group, recently co-presented a poster at the 2017 CTOS (Connective Tissue Oncology [...]
New Horizons – SDH Deficient GIST
Dr. Suzanne George, Co-Clinical Director, Center for Sarcoma and Bone Oncology, Dana Farber Cancer Institute presents at New Horizons GIST Meeting in Wayne, NJ on Oct. 2, 2017.
Global GIST Advocates Convene at LRG Headquarters
The Life Raft Group had the pleasure of hosting the global New Horizons GIST meeting this year in our Wayne, New Jersey office. This international meeting traditionally gathers global GIST advocates with the shared [...]