SDH-deficient GIST

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New in SDH-Deficient Research – The Paraganglioma* Preclinical Project

The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, academics, and patient advocacy groups. A member of our consortium, Dr. Joshua D. [...]

By |2018-12-17T14:34:57-05:00December 17th, 2018|News, Newsletter, Research|

LRG Webcast: What is SDH, How Is It Related to Cancer, and What Can Be Done About It?

SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can 'benefit' from the loss of SDH and continue to [...]

By |2018-12-12T11:18:57-05:00November 2nd, 2018|Webcast|

The Life Raft Group Announces an Innovative Consortium to Accelerate Cancer Research at the Biden Cancer Summit

WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]

By |2019-04-19T12:41:47-04:00September 21st, 2018|News, Pediatric GIST, Research, SDH-Deficient GIST|

A New Lifeline – The Pediatric & SDH-Deficient GIST Consortium

The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.

By |2019-09-23T14:37:20-04:00September 21st, 2018|News, Pediatric GIST, Research|

The Werners – Finding the New Normal Living with Wildtype GIST

Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.

By |2019-11-08T11:05:18-05:00June 29th, 2018|Member Stories, News, Newsletter|
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