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Pediatric & SDH-Deficient GIST Consortium Update

Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]

By |2019-02-21T16:00:26-05:00February 21st, 2019|News, Newsletter, Pediatric GIST, SDH-Deficient GIST|

Life Fest Pediatric/SDH Deficient GIST Track Provides Wealth of Information

The 2018 Life Fest Meeting was held in Miami on July 13 - 15 and was attended by 140 patients, friends, family and caregivers. This was a truly international event, with participation from 20 [...]

By |2019-04-19T12:42:57-04:00August 15th, 2018|Events, Pediatric GIST|

One Hundred and Thirty Thousand Wishes: Life Fest 2014

One hundred and thirty thousand wishes, tributes, memories, goals, and dreams greeted me on arrival to the Life Raft Group’s Life Fest 2014. They were in the shape of origami boats. From a distance, [...]

By |2018-07-26T13:53:15-04:00December 8th, 2014|Advocacy, Events, Member Stories, News|

Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board

The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the first Pediatric GIST Virtual Tumor Board!* Due to severe funding cuts that reduced [...]

By |2019-04-05T11:04:10-04:00April 11th, 2014|GIST Education, News, Pediatric GIST, SDH-Deficient GIST|
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