Patient Registry

How to be a GIST Hero: Donating Tissue for GIST Research

For  patients who have recently been diagnosed with cancer, donating a tissue sample is probably the last thing on their minds. But it’s an important consideration. Researchers often rely on donated tissue to advance [...]

By |2018-10-30T09:49:49-04:00June 10th, 2016|Newsletter, Research, Tissue Bank|

Clinical Registry Study Planned by ASCO

American Society of Clinical Oncology (ASCO) is planning its first-ever clinical registry study, the Targeted Agent and Profiling Utilization Registry (TAPUR).  ASCO plans should increase patient access to off-label drugs and match patients with [...]

By |2018-07-06T13:59:34-04:00January 6th, 2015|Gleevec, News, Patient Support, Side Effects, Stivarga, Sutent|

Distribution by State of U.S. GIST Patients in LRG Patient Registry

We have put together a map showing the distribution of GIST patients in the U.S. who are living with GIST in the LRG Patient Registry by state. The map shows how geographically diverse the Patient Registry is, with patients spread throughout the country.

By |2019-09-20T16:00:08-04:00April 1st, 2013|News, Patient Registry|

Join Our Tissue Bank – Help the LRG Find A Cure

Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.

By |2019-09-20T12:53:09-04:00April 1st, 2013|Advocacy, News, Patient Registry, Tissue Bank|
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