In this webinar. Dr. Andrew Blakely, surgical oncologist, National Cancer Institute, Center for Cancer Research, NIH, discussed the basics of surgical removal of primary GISTs and considerations in multimetastatic disease.
Dr. Andrew Blakely, National Cancer Institute, NIH, presented GISTs: Surgery Basics at Life Fest 2022 in New Orleans.
Identifying rare subsets of GIST and starting new clinical trials is critical. Read here about one researcher's clinical trial progress.
In this issue of LRG Science, we highlight the power of collaboration in medicine with a recap of the Virtual Tumor Board co-hosted with the NIH. Due to the pandemic, The Life Raft Group was asked to organize a Virtual Tumor Board to assure that challenging cases were presented in order to help the patients and their treating physicians develop an effective treatment plan.
The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.
Dr. Andrew Blakely, Program Director, Surgical Oncology Research Fellowship, National Cancer Institute, National Institutes of Health, shares how his team works with adult SDH-deficient GIST patients.
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Participants at the 15th Pediatric and Wildtype GIST Clinic at the National Institute of Health (NIH) on July 5-7 participated in GAD activities based on our H.E.R.O. campaign. Our NIH Clinic participants [...]
The 14th Pediatric and Wildtype GIST Clinic was held at the National Institute of Health (NIH) in Bethesda, Maryland on June 15-17, 2016. What follows is a summary of the discussion held during the [...]
The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]
