LRG Patient Registry

GIST Collaborative Tissue Bank: A researcher’s perspective

The Life Raft Group GIST Collaborative Tissue Bank consists of a collection of tumor specimens from a large number of patients, stored at Stanford University. The advantages of having a tissue bank for a [...]

By |2020-02-05T08:36:22-05:00February 10th, 2016|News, Newsletter, Research, Tissue Bank|

Generic Imatinib Approved in the US for CML: What does it mean for GIST patients?

On February 1, 2016, the commercial launch of the generic version of imatinib mesylate (Gleevec), for CML (Chronic Myeloid Leukemia) was approved by the FDA after the Novartis patent expiration and will become available for the first time in the United States through Sun Pharmaceuticals.

By |2019-09-23T11:28:24-04:00February 10th, 2016|Drug Treatment, Generics, Gleevec, News, Newsletter|

Institute of Medicine Report Findings on Diagnostic Error

A recent report from the Institute of Medicine (IOM), Improving Diagnosis in Healthcare, outlines findings on the state of diagnostic error in our healthcare system. A follow-up to the 2000 landmark study, To Err [...]

By |2019-09-24T12:54:22-04:00October 7th, 2015|Diagnosis, News, Research|

Clinical Trial Data Sharing: LRG’s Model for Collaboration

A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]

By |2019-04-08T09:29:38-04:00March 3rd, 2015|Clinical Trials, News, Patient Registry, Tissue Bank|

LRG patient registry: powerful tool for patients, physicians and researchers

The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is often years if not decades instead of days or weeks like it is [...]

By |2019-09-20T12:41:08-04:00October 24th, 2014|News, Patient Registry, Research, Tissue Bank|
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