LRG Patient Registry

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Are YOU Seeing a GIST Specialist?

When diagnosed with any disease, it's important to see a specialist who will have the proper experience to guide you to an effective treatment protocol. This LRG survey queried LRG members about physicians, the physician's ability to answer their questions, and who recommended their GIST specialist in order to get a snapshot of patients' satisfaction with their with their care.

By |2019-12-18T14:50:30-05:00December 18th, 2019|News, Newsletter, Patient Registry|

The Life Raft Group Patient Registry in Review 2018

Click on image to see Patient Registry in Review 2018 The Life Raft Group has played an instrumental role in bridging the gap between patients with valuable clinical Gastrointestinal Stromal Tumor (GIST) [...]

By |2019-03-25T10:37:22-04:00March 22nd, 2019|News, Patient Registry, Research|

New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy

Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]

By |2019-07-03T10:48:28-04:00June 29th, 2018|GIST Education, Mutational Testing, News, Newsletter|

LRG Discusses Importance of Real World Evidence in GIST Research at the FDA

On April 6th, 2018, Executive Director, Norman Scherzer; Data Analyst, Jerry Call; Real World Evidence Scientist, Yu Wang, and Patient Registry Director, Denisse Montoya, of The Life Raft Group, were invited to present at [...]

By |2018-10-29T13:42:27-04:00June 29th, 2018|Newsletter, Research|

The Life Raft Group Patient Registry in Review 2016

The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]

By |2018-10-30T09:19:42-04:00February 24th, 2017|News, Newsletter, Patient Registry|

Collaboration Lays the Groundwork for Breakthroughs in GIST

This article originally appeared in the January 30th edition of Cure Today. Less than two decades ago, Gleevec (imatinib) drastically changed the frontline treatment for patients with gastrointestinal stromal tumors (GIST). However, as patients [...]

By |2018-10-30T09:20:36-04:00February 24th, 2017|News, Newsletter, Research|

GIST Collaborative Tissue Bank: A researcher’s perspective

The Life Raft Group GIST Collaborative Tissue Bank consists of a collection of tumor specimens from a large number of patients, stored at Stanford University. The advantages of having a tissue bank for a [...]

By |2020-02-05T08:36:22-05:00February 10th, 2016|News, Newsletter, Research, Tissue Bank|
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