Management of Adults with SDH-Deficient GISTs
Dr. Andrew Blakely, Program Director, Surgical Oncology Research Fellowship, National Cancer Institute, National Institutes of Health, shares how his team works with adult SDH-deficient GIST patients.
Building a Network of Rare Specialists
Margo Shoup is a doctor on a mission. She moved from the Chicago area to Connecticut almost a year ago and has been the catalyst behind the creation of specialized disease teams targeting cancer care in a health system that covers an extensive area from western Connecticut up into the Hudson Valley of New York State.
Making New Connections in NJ
Earlier this month, members of the LRG staff were invited to the Rutgers Cancer Institute of New Jersey by sarcoma specialist Dr. Roman Groisberg.
Are YOU Seeing a GIST Specialist?
When diagnosed with any disease, it's important to see a specialist who will have the proper experience to guide you to an effective treatment protocol. This LRG survey queried LRG members about physicians, the physician's ability to answer their questions, and who recommended their GIST specialist in order to get a snapshot of patients' satisfaction with their with their care.