Michelle Durborow with Rodrigo Salas, LRG board member, at tenth annual ICORD meeting. The tenth annual ICORD meeting was held in Mexico City on October 13-14 with the theme “A Decade of Discoveries and [...]
On Friday, May 22, members of the Life Raft Group traveled to Columbia University’s Mailman School of Public Health to share the technology, capabilities and data of the LRG Patient Registry. The presentation was [...]
A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]
A recent article by Lindsey Cook on the US News and World Report blog discusses the value of big data, the repositories of health information that are becoming more commonplace in healthcare institutions and organizations. [...]
The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is often years if not decades instead of days or weeks like it is [...]
One of the frequently asked questions from the GIST Community is “Why are there some GIST patients who do not take any medication to treat GIST?”
Institutional Review Boards (IRBs) are the core of the well-established U.S. system for the protection of human research participants.
Having your GISTory or medical summary up to date and handy when faced with a medical emergency, is crucial to have on hand, when making decisions on how to proceed with your care.
We have put together a map showing the distribution of GIST patients in the U.S. who are living with GIST in the LRG Patient Registry by state. The map shows how geographically diverse the Patient Registry is, with patients spread throughout the country.
Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.