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NORD Hosts Rare Disease Summit

The National Organization for Rare Disorders (NORD) held a Rare Disease Summit in Washington, D.C. October 20019, hosting several thousand people comprised of patients, advocates, non-profit employees, health providers, IT developers, pharmaceutical staff, physicians and researchers, and representatives from government entities.

By |2019-12-18T11:06:15-05:00December 18th, 2019|Advocacy, Conferences, News, Newsletter|

LRG Assisted in CAP Guidelines Modifications with a Diagnostic Algorithm

The LRG, in collaboration with the Pediatric & SDH-Deficient GIST Consortium and key opinion leaders among the GIST pathology community (with Dr. Brian Rubin taking the lead), played a significant role in changing CAP Guidelines. CAP Guidelines are protocols for pathologists to instruct them on the process of diagnosing a disease based on tumor tissue samples.

By |2019-08-29T10:18:35-04:00August 29th, 2019|Advocacy, Mutational Testing, News|

New Horizons 2019 Photo Gallery

This is the photo gallery for the New Horizons GIST Conference for 2019 held in NJ and hosted by the Life Raft Group. This international meeting aims to unify the global GIST patient advocacy community with key opinion leaders and facilitate ways to increase survival worldwide.

By |2020-07-15T14:52:44-04:00June 20th, 2019|Advocacy, Global, News|

New Horizons – International Focus on the Power of Real World Data to Enhance Advocacy Efforts

International advocates meet in Wayne, NJ, at the annual New Horizons GIST Conference to discuss scientific updates, regional issues, and unmet needs for the global GIST community in May 2019.

By |2020-07-15T14:51:55-04:00June 20th, 2019|Advocacy, Global, News, Newsletter|

One Voice Against Cancer (OVAC) Advocates for Cancer Patients

OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]

By |2019-07-02T14:28:52-04:00June 20th, 2019|Advocacy, News, Newsletter|

State Leader Spotlight – John Abrams, Colorado, USA

John Abrams, our new LRG State Leader for Colorado, has a vision of helping others cope with GIST. John’s story spans a journey with three types of cancer. First, misdiagnosed in 1997 with leiomyosarcoma, [...]

By |2019-07-03T09:26:03-04:00June 20th, 2019|Advocacy, Member Stories, Patient Support|
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