Monthly Archives: July 2014

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Expert patient training program a success

The LRG is proud to announce that the inaugural class of our GIST Expert Patient Training Program has been completed. The class, which was open to GIST patients, caregivers, and other members oaf the extended GIST community, was comprised of just under 20 students and was a comprehensive offering designed to help participants better understand the science behind GIST.

By |2019-09-20T11:26:37-04:00July 2nd, 2014|GIST Education, News|

LRG member Eileen Glasser creatively networks to support GIST Awareness Day

As July 13’s GIST Awareness Day draws closer we are encouraging all of our members to make the day their own by spreading the word in their local communities. Raising awareness about GIST eases obstacles to education, treatment and research that make this disease so difficult to battle. GIST Awareness Day puts the power to help bring about this change in the hands of you, our members, who have been most profoundly touched by GIST.

By |2019-09-20T11:27:24-04:00July 2nd, 2014|Events, Member Stories, News|

Alianza GIST meets in Zurich, Switzerland

Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.

By |2019-09-20T15:49:32-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News, Patient Support|

New Horizons Takes Place in Zurich, Switzerland

With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.

By |2019-09-20T15:49:04-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News|

NIH Clinic provides support and a healthy dose of fun

The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.

By |2019-09-20T11:29:57-04:00July 2nd, 2014|Advocacy, GIST Education, News, Patient Support, Pediatric GIST|

Poker for Hope proves to be huge success

On Saturday, May 17th in the Caesars Palace poker room in Las Vegas, the Poker For Hope charity tournament took place, benefiting Tia’s Hope, The Life Raft Group, and Phase One Foundation. Poker for Hope was started by these three non-profit cancer support organizations with ONE goal in mind…A CURE!

By |2019-09-20T11:30:37-04:00July 2nd, 2014|Events, Fundraising, News|
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