Monthly Archives: April 2013


Who’s laughing now? Actress Mo Collins uses humor in her battle with GIST

Mo Collins is not your typical actress/comedienne, because Mo Collins is a GIST survivor. Keep reading to learn more about Mo Collins and her fight against GIST. Mo is using this gift in a very selfless way by organizing a comedy fundraiser for the Life Raft Group and GIST research.

By |2019-09-20T12:49:27-04:00April 1st, 2013|Advocacy, Member Stories, News|

Stivarga becomes first FDA-approved third-line drug treatment for GIST

The Food and Drug Administration, in a much-anticipated announcement for Gastrointestinal Stromal Tumor patients, approved Bayer Pharmaceutical’s drug, Stivarga, for use as a third-line treatment for advanced GIST in February.

By |2019-09-20T12:49:52-04:00April 1st, 2013|Drug Treatment, News, Side Effects, Stivarga|

Family planning with GIST can be a hard decision

Family planning can be one of the hardest decisions patients with GIST make, but for Carolina Ponce Williams the decision was easy. At high risk for progression, Carolina longed to start a family. So she decided to adopt.

By |2019-09-20T12:50:17-04:00April 1st, 2013|Member Stories, News, Pediatric GIST|

Pediatric GIST Patient Welcomes Baby Boy!

Pediatric GIST patient Jason DeLorenzo welcomes a baby boy! Jill and Jason welcomed their firstborn son and first child, Simon Joseph. He was born at 6:58am on 3/24/13. 6 lbs. 11oz. 20 inches long. Simon is a wide-eyed, very attentive and curious baby.

By |2019-04-22T09:17:45-04:00April 1st, 2013|Member Stories, News, Pediatric GIST|

Distribution by State of U.S. GIST Patients in LRG Patient Registry

We have put together a map showing the distribution of GIST patients in the U.S. who are living with GIST in the LRG Patient Registry by state. The map shows how geographically diverse the Patient Registry is, with patients spread throughout the country.

By |2019-09-20T16:00:08-04:00April 1st, 2013|News, Patient Registry|

Join Our Tissue Bank – Help the LRG Find A Cure

Join our Tissue Bank - Help the LRG in the search for a cure. Wildtype GIST tissue is needed for a current LRG Research Team project. If you or a loved one are a wildtype GIST patient, please help the LRG Research Team in its search for the cure by donating your tissue.

By |2019-09-20T12:53:09-04:00April 1st, 2013|Advocacy, News, Patient Registry, Tissue Bank|
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