Monthly Archives: February 2013

LRG Sets GDOL Miami Date for March

The second annual GIST Day of Learning will be held on March 23, 2013. This year we are privileged once again that Dr. Jonathan Trent of Sylvester Cancer Center in Miami has agreed to host our gathering and we are honored to hear what he has to say.

By |2018-07-23T10:46:26-04:00February 1st, 2013|Events, GIST Education, News, Patient Support|

LRG launches new & improved website, convenient mobile app & online store!

After two years of planning, toiling, and more planning, the LRG unveiled its redesigned website on January 1 at our same web address: liferaftgroup.org. Finding the balance between providing life-saving information and explaining GIST in a concise, understandable way, has always been a struggle for the Life Raft Group.

By |2019-09-20T13:17:10-04:00February 1st, 2013|Fundraising, Newly Diagnosed, News, Patient Registry|

Personalized medicine: is it myth or reality?

Executive Director’s report focuses on better treatment options for GISTers For my Executive Director’s report, I usually highlight the many accomplishments of the Life Raft Group. Some of which include: Launching a GIST Day [...]

By |2019-09-20T13:17:52-04:00February 1st, 2013|Advocacy, Executive Director's Report, Mutational Testing, News|

LRG & colleagues make their mark on 17th annual CTOS meeting in Prague

Representatives from the Life Raft Group recently traveled to Prague, Czech Republic to attend the annual Connective Tissue Oncology Society (CTOS) meeting. CTOS is an international group comprised of physicians and scientists with a primary interest in the tumors of connective tissues.

By |2019-09-20T13:18:16-04:00February 1st, 2013|Events, News|

Patients Face Numerous Obstacles In Quest For Life-Saving Treatment

“It was such a frustrating time. It was awful,” Linda says, recalling how doctors had recommended she give Glaxo-SmithKline’s drug Votrient a shot but was unable to get Jessica’s insurance company to cover it despite appeals documented by GIST specialists.

By |2019-04-18T11:51:54-04:00February 1st, 2013|Advocacy, Coping with GIST, Drug Treatment, News|

Lon Garber’s Excellent Adventure: facing Gollum, P.T. & Paul Simon with R2D2

Lon Garber It all began in Africa with a pain in my backside. My wife, Val, jokingly called it payback time since I’d been a pain in her backside for 37 years. The [...]

By |2019-09-20T13:18:45-04:00February 1st, 2013|Member Stories, News, Side Effects, Surgery|

LRG Research Team members publish results of imatinib combination study

Drs. Jonathan Fletcher, of Brigham & Women’s Hospital, Harvard University and Maria Debiec-Rychter, of the Catholic University in Leuven, Belgium, members of the LRG Research Team were part of a recently published study that looked at the effectiveness of GDC-0941, a PI3K inhibitor when used in combination with imatinib (Gleevec).

By |2019-09-20T13:20:42-04:00February 1st, 2013|News, Research|
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