oncoguia
Alianza GIST and Oncoguia have formalized a new partnership to work together to benefit GIST patients in Brazil.

The first goal of this partnership is to identify GIST patients in the different regions of Brazil, contact them and give them information about the disease, educate them on their treatment, give them emotional support and guide them on the best ways to access treatment.

Brazilian GIST patients will greatly benefit from this partnership because through Oncoguia they will have access to updated information that Alianza GIST and the Life Raft Group have on the latest advances in research and GIST treatments.

Also, GIST patients will have access to specific diagnostic tests, such as mutational testing of their tissue samples. We hope that this partnership will be successful and lead to regular meetings with patients, formation of a center of excellence for GIST and creation of quality control of procedures for testing of tissue samples.

 

Piga Fernández
Author: Piga Fernández

Piga Fernández, Santiago, Chile, is a Global Relations Consultant since 2009 for the Life Raft Group , a GIST Patient Organization. She founded and is the Executive Director of Fundación GIST Chile, a nonprofit organization dedicated to support GIST and other gastrointestinal patients through education, information, emotional support and advocacy, with the goal of having them experience a better quality of life. Additionally, She is also the Coordinator of Alianza GIST, a consortium of GIST groups in Latin America. Her advocacy efforts in Chile have led to important changes in her country, impacting both legislative change and raising awareness for rare diseases. A GIST patient who was diagnosed incorrectly in 1995 with leiomyosarcoma, she understands the importance of correct diagnosis and access to treatment. She plays an integral role in working with our international patients, to assure they receive the quality of care necessary to survive and thrive.