Monthly Archives: October 2011

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Sign our petition: Safe medicines save lives!

Many cancer patients around the world have poor access to cancer therapy, especially in parts of Latin America. For those who cannot afford or access the original branded medicine, they are left with alternative options. Those medicines may be less safe, of lesser quality, or not produce the desired therapeutic effect as the original counterpart. Thus, patients’ lives are at risk.

By |2019-09-30T13:34:32-04:00October 1st, 2011|News|

Dutch GISTers share laughter, tears & hugs

It was a foggy autumn Saturday morning, September 24th, 2011, when my husband and I drove to the annual GIST Contact Day. From all parts of our country as well as from Belgium, and countries like Germany and Portugal, Dutch speaking members were on their way to celebrate life with each other.

By |2019-09-30T13:35:23-04:00October 1st, 2011|News|

Social Security’s Compassionate Allowances explained

The United States Social Security Administration (SSA) pays disability benefits to people who cannot work because they have a medical condition that is expected to last at least one year or result in death. Federal law requires this very strict definition of disability. While some programs give money to people with partial disability or short-term disability, Social Security does not.

By |2019-09-30T13:35:58-04:00October 1st, 2011|News|

Pediatric GISTer Will Test His Mettle in Marine Corps Marathon

One of those things is to run a marathon. At the Battle of Marathon, the legend of the runner Pheidippides was born, as his running from Marathon to Athens declaring "We are victorious" and dying of exhaustion immediately. It was hailed as the farthest a man could run before he died.

By |2019-04-05T11:33:06-04:00October 1st, 2011|News, Pediatric GIST|

LRG Launches Mutational & Plasma Level Testing Survey Project

Recently, the Life Raft Group began work on a survey project sponsored by Novartis Pharmaceuticals designed to assess knowledge and practices among patients and physicians regarding mutational analysis and plasma level testing.

By |2019-04-08T08:49:37-04:00October 1st, 2011|Mutational Testing, News, Survival Strategies|

Eighth Annual LRG Poker Tourney raises over $110K!

The Eighth Annual New York City Poker Tournament to benefit GIST research, held on September 22nd at the Midtown Loft and hosted by Board President Jerry Cudzil, was once again a tremendous success thanks to all of our supporters who came out to play for a cure. Jerry first began hosting the event in 2004, when his father-in-law and friend, Bill Roth, was battling GIST. Sadly, Bill lost his battle with GIST in 2008, but Jerry continues the fight and carries on Bill’s legacy – to find a cure.

By |2019-09-30T13:36:29-04:00October 1st, 2011|Fundraising, News|
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