Mutational testing determines whether you have a mutation present in your tumor, and what genotype it is. Examples include Exon 11 or 9 (for KIT positive tumors), Platelet Driven Growth Factor Receptor Alpha (PDGFRA), or [...]
We are proud to inform you that Asociación GIST Argentina (AGA) is finally an official, legal organization, which allows us to receive funds to run the association. This is crucial for AGA's future because it will allow [...]
Shortly after being diagnosed with GIST in 2003, Dina Wiley was referred to the Life Raft Group, where she found essential support and vital information. Once she was put in touch with Floyd Pothoven, LRG’s [...]
I think it's important to give back and hopefully as a Texas Rep. for GIST I'll be able to help others. When I was first diagnosed with GIST, it was the most stressful period in [...]
Many cancer patients around the world have poor access to cancer therapy, especially in parts of Latin America. For those who cannot afford or access the original branded medicine, they are left with alternative options. Those medicines may be less safe, of lesser quality, or not produce the desired therapeutic effect as the original counterpart. Thus, patients’ lives are at risk.
It was a foggy autumn Saturday morning, September 24th, 2011, when my husband and I drove to the annual GIST Contact Day. From all parts of our country as well as from Belgium, and countries like Germany and Portugal, Dutch speaking members were on their way to celebrate life with each other.
The United States Social Security Administration (SSA) pays disability benefits to people who cannot work because they have a medical condition that is expected to last at least one year or result in death. Federal law requires this very strict definition of disability. While some programs give money to people with partial disability or short-term disability, Social Security does not.
One of those things is to run a marathon. At the Battle of Marathon, the legend of the runner Pheidippides was born, as his running from Marathon to Athens declaring "We are victorious" and dying of exhaustion immediately. It was hailed as the farthest a man could run before he died.
Recently, the Life Raft Group began work on a survey project sponsored by Novartis Pharmaceuticals designed to assess knowledge and practices among patients and physicians regarding mutational analysis and plasma level testing.
The Eighth Annual New York City Poker Tournament to benefit GIST research, held on September 22nd at the Midtown Loft and hosted by Board President Jerry Cudzil, was once again a tremendous success thanks to all of our supporters who came out to play for a cure. Jerry first began hosting the event in 2004, when his father-in-law and friend, Bill Roth, was battling GIST. Sadly, Bill lost his battle with GIST in 2008, but Jerry continues the fight and carries on Bill’s legacy – to find a cure.