Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.
I learned about GIST almost nine years ago. Before that I had no idea that it existed. We all hear about the big population cancers like breast cancer or lung cancer, but it is [...]
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
The 15th Pediatric and Wildtype GIST Clinic was recently held at the National Institute of Health in Bethesda, Maryland on July 5 - 7, 2017. The Clinic is a collaborative effort between clinicians and [...]
A recent report from the National Institutes of Health Pediatric and Wildtype GIST Clinic, published in the Journal of Clinical Oncology suggests that surgical resection for wildtype GIST should be restricted to the initial [...]
My husband Brian, and I have been married 33 years and have worked together in an 8 x 10 room. Brian has literally been by my side since marriage. When I was diagnosed with Wildtype GIST, we knew this was a journey we’d be taking on together.
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
Alia Coleman, a Pediatric GISTer, has known fear, and works at overcoming it daily. She is an inspiration to us all. This video was used as part of a presentation on fearlessness at the [...]
The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that the second meeting of the NIH-LRG Virtual GIST Tumor Board was held on October 3, 2014. Virtual GIST [...]
Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type and Syndromic GIST (PAWS GIST) clinic in the United Kingdom was held on [...]