About Bella At just seven years old, Bella Rocco was undergoing surgery after being diagnosed with a rare form of cancer—pediatric GIST. While GIST is considered a rare cancer, pediatric cases are even [...]
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
The 14th Pediatric and Wildtype GIST Clinic was held at the National Institute of Health (NIH) in Bethesda, Maryland on June 15-17, 2016. What follows is a summary of the discussion held during the [...]
Members of Team-J's Charity Bicycling Team are planning to bicycle in Ride Across America in support of two causes; Hydrocephalus Awareness - www.hydroassoc.org GIST Pediatric Cancer Awareness - www.liferaftgroup.org Donate Now TEAM-J's local [...]
Life with cancer is like tossing all your dreams, goals and achievements into a bag, shaking it up and dumping it onto the floor to be stomped upon. Some say I was lucky to get my diagnosis at age 16, before I had a career or a family to support.
Alia Coleman, a Pediatric GISTer, has known fear, and works at overcoming it daily. She is an inspiration to us all. This video was used as part of a presentation on fearlessness at the [...]
The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that the second meeting of the NIH-LRG Virtual GIST Tumor Board was held on October 3, 2014. Virtual GIST [...]
Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type and Syndromic GIST (PAWS GIST) clinic in the United Kingdom was held on [...]
A Wildtype GIST Clinic has been announced by the National Institutes of Health, USA. The upcoming “Pediatric and Wildtype GIST Clinic” at the NIH is scheduled for June, 10th-12th, 2015. There are spots available for [...]
The American Society of Clinical Oncologists (ASCO) and Livestrong Foundation have launched a video on YouTube to promote discussion of fertility preservation in young cancer patients. Keep reading to learn more.