Patient Advocacy

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Seminar for Chilean Patient Organizations Aligns Common Goals

On November 26, 2016, patient advocacy organizations in Chile came together at the School of Medicine at the University of San Sebastian in Santiago, Chile for a seminar entitled "Clinical Studies, Clinical Guidelines and [...]

By |2018-10-30T09:26:28-04:00December 12th, 2016|Advocacy, Events, Global, News|

Brief from ASCO’s Clinical Cancer Advances 2016

On February 4, 2016, Life Raft Group member Noha Hussein attended the American Society of Clinical Oncology’s (ASCO) Capitol Hill Briefing on their report, “Clinical Cancer Advances 2016,” in Washington, DC at the Rayburn [...]

By |2018-10-30T09:55:28-04:00April 5th, 2016|Advocacy, News, Newsletter|

Institute of Medicine Report Findings on Diagnostic Error

A recent report from the Institute of Medicine (IOM), Improving Diagnosis in Healthcare, outlines findings on the state of diagnostic error in our healthcare system. A follow-up to the 2000 landmark study, To Err [...]

By |2019-09-24T12:54:22-04:00October 7th, 2015|Diagnosis, News, Research|

UK Pulls Stivarga From Cancer Drug Fund Endangering GIST Patients

The National Health Service (NHS) in the United Kingdom has announced plans to halt funding through the Cancer Drug Fund for regorafenib (Stivarga), thereby preventing GIST patients from having access to this life-saving medication.We at [...]

By |2018-09-10T09:36:55-04:00January 29th, 2015|Advocacy, News, Stivarga|
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