Home/Tag: NIH

LRG Featured in the MyPART Minute

The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.

By |2020-04-07T08:37:47-04:00April 7th, 2020|Advocacy, News|

Partnership for Survival – Treating the Rarest of the Rare

Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.

By |2020-02-28T14:30:39-05:00February 27th, 2020|Advocacy, News, Research|

Encouraging Rare Disease Connections at the NORD Conference

The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]

By |2018-10-30T11:39:34-04:00December 16th, 2015|Advocacy, Newsletter|

Partnering for Cures Seventh Annual Meeting Held in NYC

The 7th Annual Partnering for Cures meeting hosted by FasterCures was held Nov. 1-3 in NYC with more than 750 movers and shakers from patient groups, pharma, academia, government and industry. Some notable participants included: [...]

By |2018-11-01T10:26:44-04:00December 16th, 2015|Advocacy, News, Newsletter|

Second Meeting of LRG-NIH Virtual GIST Tumor Board Now Accepting Applications

The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that applications are currently being accepted for the second meeting of the NIH-LRG Virtual GIST Tumor Board.

By |2019-09-20T14:42:35-04:00August 21st, 2014|Advocacy, GIST Education, News, Research|
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