The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.
Dr. Andrew Blakely, Program Director, Surgical Oncology Research Fellowship, National Cancer Institute, National Institutes of Health, shares how his team works with adult SDH-deficient GIST patients.
Our Rare Disease Day offering is a whitepaper titled 'Partnership for Survival – Treating the Rarest of the Rare' detailing how a collaboration with the NIH has become a model for other advocacy groups and researchers.
Participants at the 15th Pediatric and Wildtype GIST Clinic at the National Institute of Health (NIH) on July 5-7 participated in GAD activities based on our H.E.R.O. campaign. Our NIH Clinic participants [...]
The 14th Pediatric and Wildtype GIST Clinic was held at the National Institute of Health (NIH) in Bethesda, Maryland on June 15-17, 2016. What follows is a summary of the discussion held during the [...]
The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]
The 7th Annual Partnering for Cures meeting hosted by FasterCures was held Nov. 1-3 in NYC with more than 750 movers and shakers from patient groups, pharma, academia, government and industry. Some notable participants included: [...]
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that the second meeting of the NIH-LRG Virtual GIST Tumor Board was held on October 3, 2014. Virtual GIST [...]
The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that applications are currently being accepted for the second meeting of the NIH-LRG Virtual GIST Tumor Board.