GDOL Los Angeles
GIST Day of Learning The Life Raft Group held a GIST Day of Learning (GDOL) in Los Angeles, California on February 18th, 2019. GDOLs are free, one-day programs that provide both education and support [...]
Life Raft group Attends Partnering for Cures Meeting
The sixth annual Partnering for Cures meeting sponsored by FasterCures was held November 16-18 in New York City. Over 1,000 attendees from biopharma, governmental agencies, academia, philanthropy and patient advocacy organizations came together to explore [...]
New Horizons Takes Place in Zurich, Switzerland
With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.
GIST specialists give support at Miami GIST Day of Learning
GIST Day of Learning (GDOL), a free event, was held at the University of Miami on Saturday, March 23. Sponsored through the generous support of Bayer, Novartis and Genentech, this event is the second in a series of seminars focusing on the education and support of GIST patients and their families.
LRG Sets GDOL Miami Date for March
The second annual GIST Day of Learning will be held on March 23, 2013. This year we are privileged once again that Dr. Jonathan Trent of Sylvester Cancer Center in Miami has agreed to host our gathering and we are honored to hear what he has to say.
Viva Life Fest! Join us in Las Vegas
The Life Raft Group will be marking a milestone at Life Fest 2012: Celebrating 10 Years of Dedication on November 9 to 11 at the Red Rock Casino in Las Vegas. We are at a [...]
Ninth Swiss meeting covers uplifting topics
About 80 GIST patients, relatives, GIST experts, interested professionals, physicians and representatives of the pharmaceutical industry gathered at the Restaurant Au Premier at Zurich Main Station in Zurich on April 8 for the ninth meeting of the Swiss GIST group. A warm welcome was extended to special guests Candy Heberlein, President of the Swiss Foundation for the Promotion of Bone Marrow Transplantation, and Christel Jäger-Freysoldt, chief executive of Das Lebenshaus in Germany.
First Harness a Cure a Huge Success
Twelve year GIST survivor and former harness driver, Bobby Kinsey, had two goals when he started planning “Harness a Cure” – to raise awareness about GIST and raise money to cure this disease. With over one hundred participants in the walk and donations continuing to arrive, Dover Down’s first Harness a Cure event to benefit the Life Raft Group’s research was a huge success thanks to Bobby who tells his fellow raftmates in the email community, “Keep Rowing.”
GIST & CML patient reps from all over the world meet in Lisbon for Patient Summit
GIST & CML patient reps had a successful meeting in Lisbon for Patient Summit. The following is excerpted from a Novartis Pharmaceuticals’ news release: The 7th annual international “New Horizons Conference for Organisations Representing People with [...]