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Why Should I Participate in the Patient Registry?

The Life Raft Group’s Patient Registry gives GIST patients an opportunity to contribute to finding a cure by sharing information on their medical status, treatments and side effects. This information is kept in a comprehensive [...]

By |2019-09-20T13:39:21-04:00September 20th, 2012|Clinical Trials, Patient Registry, Tissue Bank|

State of the GIST Community Part 3: What do we know about mutational testing?

As of May 1, 2011, the LRG patient registry only received 377 reports of mutations out of 1,327 patients, which only represents 28 percent of the entire registry. Part of this may be related to the fact that mutational testing is not common practice at diagnosis.

By |2019-04-05T09:20:33-04:00June 1st, 2011|Mutational Testing, News|
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