El encuentro, organizado para conmemorar el Día Internacional de la Concientización del GIST en conjunto con la Fundación GIST Chile, destacó la necesidad y la importancia del diagnóstico precoz y las terapias personalizadas para mejorar la calidad de vida de los pacientes.
The Life Raft Group hosts two monthly support groups - one specifically for GISTers and the other for Caregivers which meet twice a month- via Zoom.
Join the LRG team, renowned GIST experts, and fellow GISTers & family at Life Fest, July 29th-31st, in New Orleans, LA, and learn more about GIST in either of these two sessions: General or SDH.
The National Comprehensive Cancer Network (NCCN) creates guidelines for different diseases to guide physicians in their clinical practice. In this webinar, Dr. von Mehren will educate GIST patients and caregivers about these guidelines and provide some case study examples of how guidelines fit into the rubric of patient care.
In March, Director of Data Mgmt and Research, Sahibjeet Kaur joined the GIST experts of AIIMS for the 99th Virtual Patient Support Group addressing patients from India.
NCCN’s Dr. Crystal Denlinger and Dottie Shead reviewed general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care.
US GIST Mentor Director, Santy DiSabatino, shares what having a Mentor means to the newly diagnosed and what being a GIST Mentor means to him and he makes an appeal for more volunteers to mentor LRG patients and caregivers.
Lidia Kornienko was searching for answers and when she reached out she found generous people willing to help assist her on the path to mutational testing and an effective treatment plan.
Holidays can be a challenge. There may be pressure to recreate a ‘Norman Rockwellesque’ experience with the perfect turkey and many happy, family photos in holiday-themed pajamas. Here are some tips to deal with the stress.
n June 2021, we trained seven LRG members from Austria, Canada, Chile, India, and Singapore. LRG’s Global GIST Mentors are survivors or caregivers who volunteer their time, energy, and talent to support others.
