Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]
The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]
"I'm glad I called the Life Raft Group. They rallied around me and told me I'm going to make it and get through this GIST journey of mine and conquer this cancer." - [...]
On Tuesday, January 12, a small delegation of LRG staff journeyed to Washington, DC, to make a presentation to the executive leadership of the National Center for Advancing Translational Science (NCATS). The team from [...]
Michelle Durborow with Rodrigo Salas, LRG board member, at tenth annual ICORD meeting. The tenth annual ICORD meeting was held in Mexico City on October 13-14 with the theme “A Decade of Discoveries and [...]
On Friday, May 22, members of the Life Raft Group traveled to Columbia University’s Mailman School of Public Health to share the technology, capabilities and data of the LRG Patient Registry. The presentation was [...]
A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]
A recent article by Lindsey Cook on the US News and World Report blog discusses the value of big data, the repositories of health information that are becoming more commonplace in healthcare institutions and organizations. [...]
The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is often years if not decades instead of days or weeks like it is [...]
One of the frequently asked questions from the GIST Community is “Why are there some GIST patients who do not take any medication to treat GIST?”
