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Blueprint & Deciphera Celebrate GIST Awareness Day 2020 – Galleries

Blueprint Medicines and Deciphera Pharmaceuticals celebrated GIST Awareness Day (GAD), July 13th, 2020, with Virtual Walks across the U.S. This year's GIST Awareness Day theme was #GISTHope.

By |2020-07-20T08:41:11-04:00July 17th, 2020|Advocacy, News, Photos|

RARE Partnership in Advocacy, Funding, and Research for Gastrointestinal Stromal Tumor

Partnerships and collaborations are critical to the progress of research in rare diseases. GIST specialist & Pediatric & SDH-Deficient GIST Consortium member, Dr. Jason Sicklick, and LRG member, Debra Melikian, are working together find a cure for succinate dehydrogenase-deficient gastrointestinal stromal tumors (SDH-deficient GIST), a hereditary rare cancer syndrome which claimed the lives of Debra’s husband and her son Merak.

By |2020-07-15T14:11:15-04:00July 14th, 2020|Advocacy, News, Research, SDH-Deficient GIST|

Life Raft Group Launches GIST Cook Cookbook with Cooking Demonstration

The LRG is hosting a virtual cooking demonstration with Chefs Rosemary and Drew Gabbe of The Fruited Plain of Parsippany, NJ, to launch our newly released cookbook, GIST Cook.

By |2020-07-10T10:31:27-04:00July 8th, 2020|Events, Fundraising, News|
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