Originally posted 3/16/2020
For more resources and posts on COVID-19, type coronavirus into the search bar.
(Newest information at bottom of the page.)
Sharing Resources to Keep You Healthy During the COVID-19 Health Crisis
We acknowledge that these are extraordinarily stressful times for all of us. Please know that the Life Raft Group is here to support you as we work together to get through this. We will continue our daily services to you during this time. We will also be distributing through all our communication channels sources of information and messages of hope. We encourage you to utilize email communities to connect. Your fellow GISTers are inspirational sources to inspire and support you.
Connect with others!
If you are not a member of the Life Raft Group (it’s free, and provides you with access to great services), please join and then request to join our GIST Chat email community. You will find a supportive family there. http://staging.liferaftgroup.org/join-our-community/
Our Facebook page is a great source of information about the LRG, and is a great place to see what is happening. This is a public page, and you can comment and share as you choose. https://www.facebook.com/liferaftgroup/
The GIST Survivor Facebook page provides a private community, a chance to share personal GIST information, and to receive feedback.
To join this community: https://www.facebook.com/groups/43875181964/10156747436151965/?comment_id=10156755316096965¬if_id=1584369505296680¬if_t=group_comment_follow
In addition, our website is a great place to find information about GIST and the resources necessary to survive and thrive.
Start with What is GIST? and GIST Education.
Here are a few trusted sources about the Coronavirus (COVID-19). As always, please be sure to consult your doctor before implementing any measures suggested.
American Society for Clinical Oncologists:: https://www.asco.org/asco-coronavirus-information
American Cancer Society: https://www.cancer.org/latest-news/common-questions-about-the-new-coronavirus-outbreak.html
Centers for Disease Control (CDC): https://www.cdc.gov/coronavirus/2019-ncov/cases-in-us.html
Dana Farber Institute: https://www.dana-farber.org/for-patients-and-families/why-dana-farber/quality-and-patient-safety/coronavirus-covid-19-information/
National Patient Advocate Foundation (NPAF), COVID Care Resource Center: https://www.patientadvocate.org/covidcare/
NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19
Artículos en español
Preguntas frecuentes sobre el COVID-19 y el cáncer: Respuestas para pacientes y sobrevivientes
Conozca toda la información relacionada con el coronoavirus (COVID-19)
Articles en français
Covid19 : soyez vigilants sur les médicaments
Posts & Videos
Coronavirus and COVID-19: What People With Cancer Need to Know
Common Questions About Coronavirus 2019 and Cancer: Answers for Patients and Survivors
Nutrition and Cancer Prevention Strategy Amidst the COVID-19 Pandemic
NIH clinical trial of hydroxychloroquine, a potential therapy for COVID-19, begins
Coronavirus and Cancer
MD Anderson – MyChart Video Visists and enhanced Virtual Care April 8 coronavirus (COVID-19) update from Dr. Peter WT Pisters (video)
Bayer Global – Our Commitment during the Coronavirus Pandemic
Food Safety during COVID-19: What People with Cancer Should Know
MyPART video: Cancer and Other Illnesses during COIV-19: How young patients and families can cope
Sarcoma Alliance Video – Sarcoma & COVID-19: Your Questions Answered
Watch this webinar, May 5th by NORD – COVID-19: Current Status of Testing, Treatments and Vaccines
Rare Action Network COVID-19 Virtual Discussion Groups – a list posted by NORD of virtual discussion groups by state
Running Essential Errands – Grocery Shopping, Take-Out, Banking, Getting Gas, and Doctor Visits – The Center for Disease Control (CDC)
NORD – In Support of Rare Disease Patients Impacted by COVID-19, NORD Launches Premium and Limited Medical Relief Program
Endocrinology in the Time of COVID-19: Management of Neuroendocrine Neoplasms (NENs) – Managing Para/Pheo in time of COVID
The New Coronavirus (COVID-19): Emerging Guidelines for People Living & Coping with Cancer CancerCare.org
Cancer and Other Illnesses during COVID-19: How young patients and families can cope National Cancer Institute
Our address is The Life Raft Group, 155 Rte. 46 West, Suite 202, Wayne, NJ 07470