COVID-19 – Resources GIST Patients Need

updated 7/24/2020
Originally posted 3/16/2020

For more resources and posts on COVID-19, type coronavirus into the search bar.

(Newest information at bottom of the page.)

Sharing Resources to Keep You Healthy During the COVID-19 Health Crisis

We acknowledge that these are extraordinarily stressful times for all of us. Please know that the Life Raft Group is here to support you as we work together to get through this. We will continue our daily services to you during this time. We will also be distributing through all our communication channels sources of information and messages of hope. We encourage you to utilize email communities to connect. Your fellow GISTers are inspirational sources to inspire and support you.

Connect with others!

If you are not a member of the Life Raft Group (it’s free, and provides you with access to great services), please join and then request to join our GIST Chat email community. You will find a supportive family there. http://staging.liferaftgroup.org/join-our-community/

Our Facebook page is a great source of information about the LRG, and is a great place to see what is happening. This is a public page, and you can comment and share as you choose. https://www.facebook.com/liferaftgroup/

The GIST Survivor Facebook page provides a private community, a chance to share personal GIST information, and to receive feedback.
To join this community: https://www.facebook.com/groups/43875181964/10156747436151965/?comment_id=10156755316096965&notif_id=1584369505296680&notif_t=group_comment_follow

In addition, our website is a great place to find information about GIST and the resources necessary to survive and thrive.
Start with What is GIST? and GIST Education.

Resources

Here are a few trusted sources about the Coronavirus (COVID-19). As always, please be sure to consult your doctor before implementing any measures suggested.

American Society for Clinical Oncologists:: https://www.asco.org/asco-coronavirus-information

American Cancer Society: https://www.cancer.org/latest-news/common-questions-about-the-new-coronavirus-outbreak.html

Centers for Disease Control (CDC): https://www.cdc.gov/coronavirus/2019-ncov/cases-in-us.html

Dana Farber Institute: https://www.dana-farber.org/for-patients-and-families/why-dana-farber/quality-and-patient-safety/coronavirus-covid-19-information/

National Patient Advocate Foundation (NPAF), COVID Care Resource Center: https://www.patientadvocate.org/covidcare/

NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19