Yearly Archives: 2018

Patient of the Month for December: Wanda Sebestin

As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]

By |2018-12-14T10:20:22-05:00December 14th, 2018|Member Stories, News, Patient of the Month|

LRG Webcast: What is SDH, How Is It Related to Cancer, and What Can Be Done About It?

SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can 'benefit' from the loss of SDH and continue to [...]

By |2018-12-12T11:18:57-05:00November 2nd, 2018|Webcast|

The Healing Power of Adventure

A cancer diagnosis at any age is life-changing, daunting, and difficult. It can be especially challenging for young adults, people ages 18-39, who are dealing with cancer while also navigating college, first careers, new relationships, starting families, and other young adult milestones. Every year, 70,000 young adults are diagnosed with cancer, and that doesn’t include those diagnosed as children who are now young adult survivors and thrivers. As a young adult with cancer, I know it can be hard finding other people who “get it.”

By |2019-11-08T10:01:40-05:00October 24th, 2018|Member Stories, News, Newsletter|

The Pediatric & SDH-Deficient GIST Consortium

Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]

By |2018-10-30T12:14:09-04:00October 24th, 2018|Advocacy, Newsletter, SDH-Deficient GIST|
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