A significant finding from a newly published study in JAMA Oncology, indicates that nearly one-fourth of GIST patients with advanced disease initially treated with imatinib will survive for ten years or more. The study, [...]
The Life Raft Group presented an informative webcast on Gene Fusions. Presented on February 22, 2017 Learn about: Recently identified gene fusions in GIST Populations they target Current studies that may identify them How they [...]
The Life Raft Group Patient Registry has over 15 years of self-reported and clinical data encompassing 35 years of patient history crossing institutional boundaries. The Patient Registry has 1703 patients from 67 countries, [...]
This article originally appeared in the January 30th edition of Cure Today. Less than two decades ago, Gleevec (imatinib) drastically changed the frontline treatment for patients with gastrointestinal stromal tumors (GIST). However, as patients [...]
My name is Suzy Hetherton Burke, I’m 66 years old and happily retired! I grew up in New Jersey, graduated from Rosemont College in PA and moved to NYC after graduation. Charlie and I met, [...]
We love our donors! All we need is LOVE Over the last 16 years, we have worked toward increasing patient survival and ensuring a better quality of life for GIST survivors. I [...]
Rare Disease Day is celebrated on the last day of February each year. The day is celebrated in order to bring attention to the general public and decision makers about rare diseases and how [...]
On Sunday, December 4, 2016, The Life Raft Group hosted an Open House to introduce members to staff and provide a tour of our newly renovated facilities. Over brunch, attendees mingled and got to [...]
On January 14, 2003 when I had surgery to remove my GIST I never dreamed I would still be here 14 years later! So little was known about this cancer, at that point the [...]
I celebrate my ten-year “cancerversary” on January 31st. I can’t believe it’s been 10 years! I will celebrate by spending some intentional time with my family, including my beautiful 16 month-old daughter, Katelyn. My [...]
