The Life Raft Group is dedicated to the welfare and survival of GIST patients worldwide and we carry out our mission through research, patient support & education and advocacy. The LRG was highlighted in all three areas at the end of 2012 and we wanted to share the important work we’re doing with all of you.
LRG Research Article Grows in Popularity
In 2012, the LRG published an article in the Journal BMC Cancer called “Survival of gastrointestinal stromal tumor patients in the imatinib era: life raft group observational registry.” The authors were LRG Science Director Jerry Call, Christopher D. Walentas, Jens C. Eickhoff, and LRG Executive Director Norman Scherzer.
We are happy to announce that the article has received over 2000 views including 317 within December. To view the article, click here.
E-patients.net post channels Norman
Susannah Fox, Associate Director of the Pew Internet & American Life Project, wrote an interesting post on e-patients.net called As She Lay Dying – a son calls on the health system to involve patients and families in improving safety.
She highlighted what her strategy would be when faced with a sudden hospitalization of a loved one and stated that her plan would include calling upon Norman Scherzer whose survival advice would be “Get angry. Get smart. Get organized.”
To view the article, click here.
Talking new clinical trials models at Sanofi
Norman participated in a workshop at Sanofi’s site in Bridgewater, New Jersey, along with a number of other patient advocacy groups.
They brainstormed ways of putting the patient first and how patient advocacy groups are important to the clinical trial process. They discussed how the pharmaceutical industry can better deliver patient value as well as defining opportunities to collaborate effectively.